HonestlyHD --- This is TEVA’s newly formatted website devoted to a broad array of important educational information about HD. The site is easy to navigate, great for families new to HD, but has information for ALL HD patients, families, and caregivers. TEVA is a major funder of HDSA, especially our TEAM HOPE WALK. They manufacture a drug prescribed to manage chorea. A lot of chorea info is included in this website.
https://honestlyhd.com
Hopes [Huntington’s Outreach Project for Education, at Standford] --- This website is updated/maintained by a team at Standford University dedicated to making scientific information about HD more readily accessible to the public. They emphasize that there are no doctors or researchers on this team…so no opinions nor advice is offered…merely ‘plain-English’ discussions of HD topics.
https://hopes.standford.edu
HD Reach --- Nonprofit support network that provides medical and educational support as well as anonymous genetic testing. Live meetings appear to be mostly in the central eastern states; however, there are some virtual meeting opportunities, like Happy Hour.
https://www.hdreach.org
HDYO [Huntington’s Disease Youth Organization] --- Not only has all the latest news about the activities of the HD Youth Organization, but has a lot of information about HD, simple to understand, organized in an easily navigable manner.
https://www.hdyo.org
HDBuzz --- This is THE PLACE to link to for the absolute latest in HD research reporting. Plus, the new website design allows you to easily navigate through years of articles, all authored by medical and research professionals, BUT written in easy-to-understand language.
https://en.hdbuzz.net
HDSA [Huntington’s Disease Society of America] --- A rich collection of information about the work of the national association, chapters, and resources. Particularly useful is the library of downloadable reference booklets on important HD topics.
https://hdsa.org
OVC [our Ohio Valley Chapter of HDSA] --- Yes, in addition to our Buckeye Bulletin digital resource, we also have an official HDSA chapter site.
https://ohiovalley.hdsa.org
Cincinnati HD Center of Excellence --- This link connects you to contact names/information, location, and other useful items.
https://hdsa.org/hdsa-center-of-excellence-at-university-of-cincinnati/
The Buckeye Bulletin --- The official digital resource for our Ohio Valley Chapter HD families. It is available 24/7/365 and updated regularly. Here is our website address https://ohiovalley.hdsa.org/about/thebuckeyebulletin for you to copy and share with family and friends.
https://ohiovalley.hdsa.org/about/thebuckeyebulletin
https://honestlyhd.com
Hopes [Huntington’s Outreach Project for Education, at Standford] --- This website is updated/maintained by a team at Standford University dedicated to making scientific information about HD more readily accessible to the public. They emphasize that there are no doctors or researchers on this team…so no opinions nor advice is offered…merely ‘plain-English’ discussions of HD topics.
https://hopes.standford.edu
HD Reach --- Nonprofit support network that provides medical and educational support as well as anonymous genetic testing. Live meetings appear to be mostly in the central eastern states; however, there are some virtual meeting opportunities, like Happy Hour.
https://www.hdreach.org
HDYO [Huntington’s Disease Youth Organization] --- Not only has all the latest news about the activities of the HD Youth Organization, but has a lot of information about HD, simple to understand, organized in an easily navigable manner.
https://www.hdyo.org
HDBuzz --- This is THE PLACE to link to for the absolute latest in HD research reporting. Plus, the new website design allows you to easily navigate through years of articles, all authored by medical and research professionals, BUT written in easy-to-understand language.
https://en.hdbuzz.net
HDSA [Huntington’s Disease Society of America] --- A rich collection of information about the work of the national association, chapters, and resources. Particularly useful is the library of downloadable reference booklets on important HD topics.
https://hdsa.org
OVC [our Ohio Valley Chapter of HDSA] --- Yes, in addition to our Buckeye Bulletin digital resource, we also have an official HDSA chapter site.
https://ohiovalley.hdsa.org
Cincinnati HD Center of Excellence --- This link connects you to contact names/information, location, and other useful items.
https://hdsa.org/hdsa-center-of-excellence-at-university-of-cincinnati/
The Buckeye Bulletin --- The official digital resource for our Ohio Valley Chapter HD families. It is available 24/7/365 and updated regularly. Here is our website address https://ohiovalley.hdsa.org/about/thebuckeyebulletin for you to copy and share with family and friends.
https://ohiovalley.hdsa.org/about/thebuckeyebulletin